Who should register?
Patients with a diagnosis of any of the following conditions can register in the Global FKRP Registry:
- Limb girdle muscular dystrophy type R9 (LGMDR9, formerly known as LGMD2I)
- Congenital muscular dystrophy type 1C (MDC1C)
- Muscle eye brain disease (MEB)
- Walker-Warburg syndrome (WWS)
Young people under the age of 18 years must be registered by their parents or guardians.
This registry is for all patients worldwide.