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Who should register?

Patients with a diagnosis of any of the following conditions can register in the Global FKRP Registry:

  • Limb girdle muscular dystrophy type R9 (LGMDR9, formerly known as LGMD2I)
  • Congenital muscular dystrophy type 1C (MDC1C)¬†
  • Muscle eye brain disease (MEB)
  • Walker-Warburg syndrome (WWS)

Young people under the age of 18 years must be registered by their parents or guardians.

This registry is for all patients worldwide.