Who should register?

Patients with a diagnosis of any of the following conditions can register in the Global FKRP Registry:

• Limb girdle muscular dystrophy type R9 (LGMDR9, formerly known as LGMD2I)
• Congenital muscular dystrophy type 1C (MDC1C) 
• Muscle eye brain disease (MEB)
• Walker-Warburg syndrome (WWS)

Young people under the age of 18 years must be registered by their parents or guardians.

This registry is for all patients worldwide.