Newsletters and Leaflets

Newsletters

You will be provided with regular updates from the Registry in the form of a newsletter, which will be sent to you annually by e-mail. Previous versions can be found here:

Issue 7

• English

Issue 6

• English
• French
• German

Issue 5

• English
• French
• German

Issue 4

• English
• French
• German

Issue 3

• English
• French
• German

Issue 2

• English
• French
• German

Issue 1

• English
• French
• German

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Leaflets

Information leaflets have been produced to help explain what the Global FKRP Registry is about and how to register. When more languages become available they will be added here.

• Catalan
• English
• Dutch
• French
• German
• Italian
• Norwegian
• Portuguese
• Spanish

If you are a doctor and would like paper copies of the leaflets sent to you then please contact the Registry team.