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Legal notice


The Global FKRP Registry, accessible on the web at, is operated by the Friedrich-Baur-Institut, Klinikum der Universität München.

Klinikum der Universität München
Ziemssenstr. 1a
80336 München
Tel. +49 (0) 89 44005-7400
Fax +49 (0) 89 44005-7402


Patientenregistersoftware-Architektur sowie -Programmierung von Marcel Kiel

Webdesign, Anwendungs-Design und Illustrationen von Ricarda Kiel

Icons von Mark James / famfamfam


All the information and advice on the Global FKRP Registry website has been assembled to the best of our knowledge. However, in any individual case consultation with the attending doctor or other qualified health professional is strongly recommended. The registry website contents are for informational purposes only and not intended to be a substitute for independent professional medical advice, diagnosis or treatment. All users of the registry website are responsible for their own medical care, treatment and oversight.

Although the greatest possible care has been taken in compiling the registry website, we cannot guarantee that all the information provided on these pages is accurate. Friedrich-Baur-Institut assumes no liability for the accuracy of the registry website contents and will not be held responsible for any loss, damage or inconvenience caused as a result of any inaccuracy or error within these pages.

Friedrich-Baur-Institut also assumes no liability for the contents and their accuracy on any third party websites that are accessible through links via the Global FKRP Registry website. These links are provided purely for your convenience, and do not imply that Friedrich-Baur-Institut supports the information given on those pages.