Newsletters and Leaflets
Newsletters
You will be provided with regular updates from the Registry in the form of a newsletter, which will be sent to you annually by e-mail. Previous versions can be found here:
January 2022
- English (opens in new window)
October 2018
June 2016
November 2014
July 2014
December 2013
April 2013
April 2012
Leaflets
Information leaflets have been produced to help explain what the Global FKRP Registry is about and how to register. When more languages become available they will be added here.
We also have a postcard available in English: Global FKRP Registry Postcard
If you are a doctor and would like paper copies of the leaflets sent to you then please contact the Registry team.